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Living with Genetic Disorder
Joan Ablon
€ 78.29
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Description for Living with Genetic Disorder
Hardcover. Chronicles experiences of adults with neurofibromatosis 1, a condition misdiagnosed for many years as "The Elephant Man's Disease". The author examines the psychosocial costs of this misdiagnosis and the media's portrayal of "The Elephant Man", and suggests improvements for care. Num Pages: 216 pages, appendices, references, index. BIC Classification: MBN; MBP; MJCG1; MJN; PSXM. Category: (P) Professional & Vocational; (UP) Postgraduate, Research & Scholarly; (UU) Undergraduate. Dimension: 234 x 166 x 22. Weight in Grams: 494.
A description of the social, educational, and economic impact of living with a neurological genetic disorder, neurofibromatosis 1. The many unpredictable and potentially stigmatizing possible symptoms of NF1, which range from physical disfigurement to severe learning disorders, may have serious consequences in every aspect of daily life. NF1 was for many years wrongly diagnosed as the Elephant Man's Disease. Ablon examines the psychosocial costs of this misdiagnosis and the ways in which stage, screen, and television parlayed The Elephant Man into the personification of the grimmist extreme of ugliness. This portrayal engendered fear and anxiety for affected persons and ... Read more
A description of the social, educational, and economic impact of living with a neurological genetic disorder, neurofibromatosis 1. The many unpredictable and potentially stigmatizing possible symptoms of NF1, which range from physical disfigurement to severe learning disorders, may have serious consequences in every aspect of daily life. NF1 was for many years wrongly diagnosed as the Elephant Man's Disease. Ablon examines the psychosocial costs of this misdiagnosis and the ways in which stage, screen, and television parlayed The Elephant Man into the personification of the grimmist extreme of ugliness. This portrayal engendered fear and anxiety for affected persons and ... Read more
Product Details
Format
Hardback
Publication date
1999
Publisher
ABC-CLIO United States
Number of pages
216
Condition
New
Number of Pages
216
Place of Publication
, United States
ISBN
9780865692879
SKU
V9780865692879
Shipping Time
Usually ships in 5 to 9 working days
Ref
99-5
About Joan Ablon
JOAN ABLON is Professor Emerita, Medical Anthropology Program, Department of Anthropology, History, and Social Medicine, School of Medicine, University of California, San Francisco. She is the author of Little People in America (Praeger, 1984) and Living with Difference (Praeger, 1988).
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